Chandigarh: That day must have been no less than a mountain falling on Gurjit Kaur and Sukhpal Singh of Punjab, when they came to know that their 6-month-old innocent daughter is suffering from a rare disease. Actually, 6-month-old Ibadat Kaur Spinal Muscular Atrophy (SMA) Type 1 SMA type 1 is a serious congenital disorder that appears in childhood. Children with SMA type 1 cannot sit without support and have great difficulty breathing, eating and swallowing. Symptoms of the disease usually appear at birth or in the first six months of life, and children suffering from it do not survive beyond the age of 2 years.
Ibadat is currently undergoing treatment at the All India Institute of Medical Sciences (AIIMS) in Punjab. Doctors said that her treatment could cost around Rs 14.5 crore, which is many times more than the capacity of her family. The girl’s family is arranging money from Impact Guru Foundation, a crowd funding organization. The family has appealed to people for help. The girl’s parents said that if the money is not arranged on time, Ibadat will not be able to survive for more than 6 months.
According to information received from sources, the family has sold all their property to save their innocent child. Now they are begging for people’s mercy. UPI ID has been shared for people’s help – ibadat2@yesbankltd. Any interested person can send his contribution on this. Ibadat’s father Sukhpal said, ‘No help is small or big, your every support is important for Ibadat. Without your help we cannot fight this devastating disease.
Spinal muscular atrophy is a hereditary disease that affects the central nervous system, cordifolia nervous system and skeletal muscle movement. In SMA, the nerves in your brain and spinal cord that control muscle strength and movement break down, causing you to stop moving. Famous scientist Stephen Hawking also suffered from this disease.
Tags: genetic diseases, punjab news
FIRST PUBLISHED : June 10, 2024, 18:23 IST