New Delhi, 23 May (IANS). American scientists have reported that a rare disease has seen a significant improvement in the condition of some young patients suffering from a rare disease ‘ALS’. The ‘ALS’ is amotrophic lateral sclerosis is a Progressive neurodynagent disorder.
ALS is a serious disease in which the brain and spinal veins stop functioning slowly. This causes the patient to walk, maintain balance, coordinate the body and even breathe. It is also called ‘Lu Geharig Disease’.
The medicines that were tried till now were able to slow down the speed of the disease, but this new drug called Ulafanerson (which was previously known as Jackifuseen), made the situation better than before in some patients.
Dr. Neel Schnider, a neurologist and scientist at Columbia University, said that the disease of the disease usually does not expect so much improvement, but this time a patient saw a shocking improvement.
Dr. Schnider and his team tested this drug on 12 patients who were a special variety of ALS which is caused by a malfunction in a gene called ‘FUS’. This variety is very aggressive and often begins in adolescents or youth.
The results of two in these patients were extremely promising. A young woman is being given this medicine since 2020. Earlier she could not walk and the machine was needed to breathe. Now she can walk without support and breathe without ventilator.
One such 35 -year -old male patient did not have symptoms of the onset of the disease but indicated in muscle examination. He has been being given this medicine continuously for three years and till date there is no symptoms in it.
After six months of medicine, a special protein (neurofilament light) depicting nerve damage in patients declined by 83%. This shows that the drug showed the effect.
Although the condition of all the patients did not improve, some of the disease slowed down and they lived a relatively long life. This medicine is now being tried on the whole world and on a large scale.
Dr. Schnider said, “If we start treatment at the right time and pay attention to the right goal, then not only stop the disease but some damage can also be overturned.”
-IANS
AS/
