New Delhi. A petition has been filed in the Supreme Court to save the life of an innocent 11-month-old girl suffering from a serious rare disease. In the petition filed by the girl’s mother, the apex court has been requested for help. Actually this girl is suffering from a rare disease called Spinal Muscular Atrophy (SMA). There is a treatment for this disease but it is so expensive that it is beyond the reach of the common man. According to the girl’s mother, the only treatment for this disease is an injection called Zolgensma. This injection and treatment will cost Rs 14 crore 20 lakh.
The girl’s father is a non-commissioned officer in the Air Force. The girl’s mother has said in her petition that although there is a provision for treatment of soldiers and their family dependents, the expenses for the treatment of this rare disease are not being given to them. Not only this, he also told that when the girl’s father tried to collect money among his fellow soldiers with the help of crowd funding, he did not get permission for the same from the army. Although a broadcast message was sent by the army to all the units, it did not provide much benefit.
Now, in a petition filed by the girl’s mother, the Supreme Court has been requested to order the Central Government to bear the cost of the girl’s treatment, otherwise it should direct the Defense Ministry and the Air Force Chief to send information to the soldiers for crowd funding. Send message. An example of a similar case has also been given by the petitioner. The petitioner has told that the father of a child suffering from the same rare disease in Bikaner, who was a teacher by profession, had also raised money for the treatment through crowd funding. His department sent a message to all the education workers and with everyone’s consent, the salaries of the employees were cut and funds were collected for the treatment of the child.
